The National Parkinson Foundation (NPF) is joining the National Parkinson Foundation Orange County Chapter (NPFOCC) and the American Parkinson Disease Association (APDA) to bring you a unique learning opportunity. Don't miss the Orange County Parkinson's Wellness Symposium, June 15-16, 2012, at the Hyatt Regency Irvine, CA.
For more information go to: http://parkinson.org
Thursday, May 31, 2012
Janet Reno and PD:
Janet Reno - born July 21, 1938 - was the Attorney General of the United States (1993-2001) She was nominated by President Bill Clinton on February 11, 1993, and confirmed on March 11. She was the first female Attorney General and the second longest serving Attorney General after William Wirt. In 1995, Reno was diagnosed with Parkinson's Disease an incurable degenerative illness that causes muscular stiffness and involuntary trembling. Although the disease has little effect on life expectancy, it almost always worsens with time. In its advanced stages, sufferers are often severely disabled, with problems feeding themselves, talking and walking.
Good Morning!
Unexpected results and problems are part of life.
Never lose hope in any condition,
Because Darkness of night always finishes with light.
~~unknown
Wednesday, May 30, 2012
Excessive Daytime Sleepiness:
Sleepiness during the day is seen in about 30-50% of patients with PD and it is more prominent as the disease advances. Daytime sleepiness may arise in patients with PD for many reasons including: Poor night’s sleep, Dopaminergic medications, especially dopamine agonists (Mirapex and Requip) may cause daytime sleepiness. Did you know dopaminergic medications like Requip can cause sudden "sleep attacks" while driving, which is a potential cause of motor vehicle accidents?
How is daytime sleepiness treated? You may have to make certain lifestyle modifications such as: Establish good sleep hygiene, which includes a set bedtime and wake-up time. Get exposure to adequate light during the day and darkness at night. Indoor lighting may not be sufficient to promote a normal circadian rhythm.
Avoid sedentary activities during the day.Participate in activities outside the home, as they may be helpful in providing stimulation to prevent daytime dozing. Get physical exercise appropriate to your level of functioning, which may also promote daytime wakefulness. Strenuous exercise, however, should be avoided for 3 to 4 hours before sleep.
Patients with excessive daytime sleepiness should be warned not to drive while sleepy. The occurrence of motor vehicle accidents is increased during periods of drowsiness and may be associated with sudden onset of sleep (sleep attacks).
If you are on a dopamine agonist and you experience daytime sleepiness or sleep attacks you will need to talk to your doctor about possibly decreasing the dose. You might also want to decrease your intake of stimulants like caffeine, modafinil (Provigil) and methylphenidate (Ritalin). Talk to your doctor before making any major lifestyle modifications.
Article accredited to: http://www.parkinson.org
Tuesday, May 29, 2012
Sleep with PD patients!
We all know how critical a good night’s sleep is to our health and well-being. However, for those of us with PD, sleep becomes even more important as the body needs more time to restore and repair itself. Not surprisingly, sleep-related symptoms are reported by more than 75% of people with PD. The following are the most common complaints:
- Difficulty falling and staying asleep
- Excessive daytime sleepiness
- Talking or yelling out while asleep
- Vivid dreaming
- Leg movements, jerking, cramping
- Difficulty turning over in bed
- Waking up to go to the bathroom
Information from: http://www.parkinson.org
Monday, May 28, 2012
Sunday, May 27, 2012
Saturday, May 26, 2012
Be Encouraged Today!
What a beautiful day!
We are alive and able to get up, with or without assistance. That's a good thing and if you have a caregiver who helps you throughout the day, tell them Thank You! Hearing those two words is better than a paycheck. Just to know that we appreciate the help they give to us doesn't go unnoticed.
I have been encouraged this week because every doctor's appointment I went to the report was good! I wasn't walking out sad by more bad news but I walked out with a smile giving me hope that its better days ahead. Those good reports will help me thorough those days when I'm not doing well or having a rough day. So enjoy your day and look beyond what we're going through and enjoy your right now!
~~Lovingly Always A Diva
We are alive and able to get up, with or without assistance. That's a good thing and if you have a caregiver who helps you throughout the day, tell them Thank You! Hearing those two words is better than a paycheck. Just to know that we appreciate the help they give to us doesn't go unnoticed.
I have been encouraged this week because every doctor's appointment I went to the report was good! I wasn't walking out sad by more bad news but I walked out with a smile giving me hope that its better days ahead. Those good reports will help me thorough those days when I'm not doing well or having a rough day. So enjoy your day and look beyond what we're going through and enjoy your right now!
~~Lovingly Always A Diva
Friday, May 25, 2012
Poem: I Choose To Live! (What About You?)
I chose to die in that moment
Rather than face my fears
Rather than choose responsibility
Rather than accept my own power
I chose to drown in that moment
Rather than embrace my capacity
Rather than trusting myself
Rather than swimming back to the boat
I chose to roll over and die
Rather than choosing to live
I chose to panic and give up
Rather than making a choice
Even though my ability I saw
And ample evidence I had witnessed
I still chose to heed my fear
And reject what I knew I could do
I have the power to swim
I have the power to act
I have the power to choose
I have the power to trust in myself
Now I choose to live
I’m not that guy any more
Who chose to drown and die
Instead of believing in myself
Now I choose to live
Responsibility I choose
Trusting in myself I choose
Taking deliberate action I choose
I CHOOSE TO LIVE!
I have the power I know!
I won’t buy your lies!
I won’t roll over and die!
I had the power all along!
You can’t hide it from me any more!
Anything I have the power to accomplish
Anything is within my reach
I choose to live right now
To live in every moment
To act in every choice
To breathe in life anew
To accept what I’ve always known inside
But had refused to believe until now
That I am powerful beyond measure
That anything I want I can do
I CHOOSE TO LIVE
-Jason Westlake
Tues, Mar 22, 2011
Thursday, May 24, 2012
Wednesday, May 23, 2012
Pope John Paul II did not let PD slow him down:
One of the youngest cardinals ever elected as pope, Pope John Paul II has been regarded as one of the most influential leaders of the twentieth century and one of the most-travelled world leaders in history. He completed 102 pastoral visits outside of Italy, and 144 within, visiting almost 130 countries during his 26 years as Pope. He was a superb linguist and was fluent in 11 languages. He was diagnosed with Parkinson’s disease in 1993 at age 73.
Parkinson’s disease is a neurological disease that can cause trembling or shaking of different parts of the body. It is progressive and can cause total paralysis and death. There is still contradiction whether the disease altered or affected Pope’s work. As is common with other patients with Parkinson’s disease, the symptoms began to show before the disease was diagnosed. Despite this, the Pope was determined to continue his visits all over the globe, making historic trips to Cuba, South Africa, Syria, Ukraine and Greece, touching the lives of millions of people and reaching out to youth. He revolutionized the modern papacy.
Pope John Paul II had made two visits to China before his Parkinson disease was diagnosed. Thousands of Catholics, as well as many others from different faiths, came to wave and cheer the charismatic leader at that time. The Pope visited China the third time after being affected by the disease in 2002 to attend World Youth Day festivities in Toronto. Despite being visibly frail, the Pope walked down the steps of his chartered jet rather than using the lift provided. It demonstrated the strength of the then 82-year-old pontiff.
With the passing years the disease started affecting Pope’s health and he was visibly suffering and struggling from the slurred speech and trembling of hands. Still he continued his travels, preaching peace, reconciliation and the inviolable dignity of the human person. He used his suffering to bring world attention to the disease and intensify the search for a cure for the disease. His disease did not prevent him from making history and from improving the lives of millions of people. He regularly called attention to the disease during his papal audiences and met several times with representatives of Parkinson disease service organizations.
In his final years the health of Pope deteriorated rapidly. He was unable to walk normally or to speak normally. On Easter Sunday, in 2005 the Pope appeared at his Vatican window to bless the crowd gathered in St. Peter’s Square. He made an attempt to speak, but he could only deliver a silent blessing. In the words of Pope, “remember the past with gratitude, live the present with enthusiasm, and look forward to the future with confidence”. He did the service of his Church for 12 years after the diagnosis of the Parkinson disease. Pope’s accomplishments have to be counted as extraordinary.
Article published: 12/14/2009 by Celebrities With Diseases
Tuesday, May 22, 2012
Welcome!
Hello (Oi) to my new viewer in Brazil! If you or a loved one are living with PD; Continue to follow me on my journey! ~~Always A Diva
Encouragement!
In learning to know other things, and other minds, we become more intimately acquainted with ourselves, and are to ourselves better worth knowing.
-Philip Gilbert Hamilton
Just A Sidebar Note :)
My readers & viewers,
The reason I'm giving you links to read about PD information is, it's been nine years for me living with PD. It was information available in 2003 but not like it is now in 2012. New research and studies are being discovered for us everyday! If you have any questions or need me to find any specific material that will benefit us, let me know. Leave your comments, say Hi or Hello. I want to hear from you!
~~Lovingly Always A Diva
The reason I'm giving you links to read about PD information is, it's been nine years for me living with PD. It was information available in 2003 but not like it is now in 2012. New research and studies are being discovered for us everyday! If you have any questions or need me to find any specific material that will benefit us, let me know. Leave your comments, say Hi or Hello. I want to hear from you!
~~Lovingly Always A Diva
The Doctor - Patient Relationship:
Being diagnosed with a disease such as Parkinson's disease is often a psychologically traumatic experience. It is crucial to establish a beneficial doctor-patient relationship at this time. (Lieberman, 1992) It is especially at this time, and in the early stages of the disease, that much of a patient's psychological condition depends on the patient's physician. Therefore, it is very important for a physician to be as conscientious as possible to ensure that they are doing everything they can to make this difficult time easier on the patient. Also, a positive patient-doctor relationship will make a patient more likely to inform the doctor of his symptoms and will encourage the patient to visit the doctor as frequently as is needed.
It is a very frequent occurrence that symptoms of Parkinson's are not recognized and treated as soon as they could be. This is because there is a great deal of fright and anxiety involved for both the afflicted and his family members in admitting that the symptoms may be those of Parkinson's. Often, both sufferer and close family members have repressed or dismissed the symptoms. (Lieberman, 1992)This may later lead to feelings of guilt that they did not give help sooner. Therefore, it is best if the physician does not reinforce the guilt by pointing out that the symptoms should have been recognized and treated earlier. This can cause animosity toward the physician and will not benefit the patient-doctor relationship.
It is also important that physician's do not inform their patients of a diagnosis of Parkinson's disease without a thorough examination, even if it is a clear-cut case. In patients who do not receive a lengthy, comprehensive examination, it is common to display disbelief of the doctor. It makes it more possible for a patient to attribute the diagnosis to a hasty examination and continue to deny that they have the disease. In order to prevent this denial, doctors should examine patients meticulously and should not share diagnosis with the patient until some time has elapsed after examination.
It is also crucial that the doctor spends some time to get to know the patient and family members prior to diagnosis. This is instrumental in developing a positive doctor-patient relationship. With this relationship established, the patient is much more likely to accept the diagnosis and to follow the instructions of the physician.
The relationship between the physician and the patient continues to be an important one as the disease progresses. The occasions on which a doctor's interactions with the patient are most influential on the patient’s psychological state are when medications are initiated or terminated. It is important for the doctor to understand that a change of medications to a patient can signify a failure of the previous treatment, or even a state of invalidity. (Lieberman, 1992) It is imperative that the physician reassure the patient that the termination of the previous treatment does not necessarily mean that it was a failure or that future treatments will fail. Many times, it is also crucial that the physician calm the patient's fear that a new medicine will render them invalid, as they may associate a particular medication with someone they know with more severe disability. This concern is especially relevant when implementing therapy with levodopa.
Article accredited to: http://www.macalester.edu/psychology/whathap/UBNRP/parkinsons/webpage.html
Monday, May 21, 2012
Monday's Meditation!
Hi Everyone on this beautiful Monday!
This week I'll be posting about the doctors who take care of PD patients. The first time I met with a team of doctors, they ask me a lot of questions. I did strange hand and arm movements, walking back and forth and all sorts of quirky things. Then it was on to the serious testing. EEG's, MRI's, Cat Scans and blood work. This when I also found out I had claustrophobia. :) My testing went on for a couple of months because sometime a patient can have PD like symptoms but not have PD.
Well after the doctors going back and forth they finally broke the news to me (after a bunch of medical terms that I didn't know) a special friend who took me to the doctor that day just blurted out "just tell us what's going on." I was already in tears and it just hurt my friend to see me like that. Well we all know what the verdict was; I had Young Onset Parkinson's Disease or YOPD! Okay I could move on now that I knew what I was dealing with. I was introduced to the neurologist that would be taking care of me and I schedule my next appointment.
Before the appointment with the neurologist, I had goggled all the information on PD. I talked with my mother to see if any one in her or my dad's family had it. She said not to her knowledge. Fine I just would have to wait and get more information from my neurologist. When I first met my neurologist, to my relief, she was a woman! Dr. Renee VanStavern was her name and before she could finish introducing herself, I hit her with my list of questions. She laughed and said I had did my home work but she told me let's just get to know each other first and she had some questions that she knew I had been asked before but she had to get her folder and profile together
To make a long story short Dr. VanStavern not only was my neurologist she became my friend! When medications were not working, she would get on her doctor's palm pilot until she could find what medication would work for me. To her surprise my body didn't connect with some medications that some of her other patients were on. Don't worry she would tell me every body doesn't react the same way. She was the doctor that found the right medication to stop my seizures. When I was having bad days, she was my therapist. My insurance wouldn't cover some of the medications and she would give me samples that would last until my next appointment. She did everything in order because so many pharmaceutical representatives see doctors everyday, they have sample medications on hand to give patients in emergencies. It was just a pleasure to have had her as my neurologist. Sadly, she moved on for education in a different hospital and state. The neurologist I have now is a little more laid back and quiet but he knows his skills.
In closing we have to see these doctors or neurologists on a month to month basis so it is advisable to have a good repertoire with them! ~~Lovingly Always A Diva
This week I'll be posting about the doctors who take care of PD patients. The first time I met with a team of doctors, they ask me a lot of questions. I did strange hand and arm movements, walking back and forth and all sorts of quirky things. Then it was on to the serious testing. EEG's, MRI's, Cat Scans and blood work. This when I also found out I had claustrophobia. :) My testing went on for a couple of months because sometime a patient can have PD like symptoms but not have PD.
Well after the doctors going back and forth they finally broke the news to me (after a bunch of medical terms that I didn't know) a special friend who took me to the doctor that day just blurted out "just tell us what's going on." I was already in tears and it just hurt my friend to see me like that. Well we all know what the verdict was; I had Young Onset Parkinson's Disease or YOPD! Okay I could move on now that I knew what I was dealing with. I was introduced to the neurologist that would be taking care of me and I schedule my next appointment.
Before the appointment with the neurologist, I had goggled all the information on PD. I talked with my mother to see if any one in her or my dad's family had it. She said not to her knowledge. Fine I just would have to wait and get more information from my neurologist. When I first met my neurologist, to my relief, she was a woman! Dr. Renee VanStavern was her name and before she could finish introducing herself, I hit her with my list of questions. She laughed and said I had did my home work but she told me let's just get to know each other first and she had some questions that she knew I had been asked before but she had to get her folder and profile together
To make a long story short Dr. VanStavern not only was my neurologist she became my friend! When medications were not working, she would get on her doctor's palm pilot until she could find what medication would work for me. To her surprise my body didn't connect with some medications that some of her other patients were on. Don't worry she would tell me every body doesn't react the same way. She was the doctor that found the right medication to stop my seizures. When I was having bad days, she was my therapist. My insurance wouldn't cover some of the medications and she would give me samples that would last until my next appointment. She did everything in order because so many pharmaceutical representatives see doctors everyday, they have sample medications on hand to give patients in emergencies. It was just a pleasure to have had her as my neurologist. Sadly, she moved on for education in a different hospital and state. The neurologist I have now is a little more laid back and quiet but he knows his skills.
In closing we have to see these doctors or neurologists on a month to month basis so it is advisable to have a good repertoire with them! ~~Lovingly Always A Diva
Sunday, May 20, 2012
Sunday's Reflections!
Let's chat!
It's been a long week for me doctor''s appointments, tending to the needs of family and others. I admit I did get a little testy (hey, I'm only human). My children's favorite line is "Mom have you took your medicine" Funny huh...not at the moment it isn't. However, to a child young or grown, Mom is supposed to be Super Mom and have all the answers!
I keep my window open in my room for a little fresh air and I set my alarm to the time for me to awake and take my medicine. But do you really know what makes me happy to be alive amidst what I go through with PD? That early in the morning I can hear the birds all chirping together to form beautiful songs to listen to. Since I personally serve God, it also lets me know that I'm alive another day! I'm thankful for that opportunity!
I have more doctor's appointments this week coming but that's okay because I can share what I'm going through with PD to you who have taken the time to view and read my blog. I don't feel like I'm going through this by myself. So whether you have PD, a family member or a close friend, encouraged them that we are not alone. Continue to support me on this journey and let's take our lives and our loved one's back and become champions and over comers of PD!
~~Lovingly Always A Diva
It's been a long week for me doctor''s appointments, tending to the needs of family and others. I admit I did get a little testy (hey, I'm only human). My children's favorite line is "Mom have you took your medicine" Funny huh...not at the moment it isn't. However, to a child young or grown, Mom is supposed to be Super Mom and have all the answers!
I keep my window open in my room for a little fresh air and I set my alarm to the time for me to awake and take my medicine. But do you really know what makes me happy to be alive amidst what I go through with PD? That early in the morning I can hear the birds all chirping together to form beautiful songs to listen to. Since I personally serve God, it also lets me know that I'm alive another day! I'm thankful for that opportunity!
I have more doctor's appointments this week coming but that's okay because I can share what I'm going through with PD to you who have taken the time to view and read my blog. I don't feel like I'm going through this by myself. So whether you have PD, a family member or a close friend, encouraged them that we are not alone. Continue to support me on this journey and let's take our lives and our loved one's back and become champions and over comers of PD!
~~Lovingly Always A Diva
Saturday, May 19, 2012
Friday, May 18, 2012
Friday's Note:
Today I finished the week with random posts. I hope they help you. Don't forget Monday's Mediation and next week I will be posting your role versus the doctor's role. Are you getting the answers to your questions, the best care, and the proper medications. Take care and be blessed!
~~Lovingly, Always A Diva
~~Lovingly, Always A Diva
Thursday, May 17, 2012
Let's have some fun - PD quiz!
Parkinson's Disease Fighters Are:
A ▢ Courageous
B ▢ Funny
C ▢ Attractive
D ▣ All of the above
If you picked D you are right!
A ▢ Courageous
B ▢ Funny
C ▢ Attractive
D ▣ All of the above
If you picked D you are right!
Hello to all my new foreign viewers!
Australia - G'day Mate! India - Hello
Colombia - Hola ('oh-la') Indonesia - Salam, Appa kabar
Ecuador - Hola ('oh-la') Mexico - Hola ('oh-la')
France - Bonjour Morocco - Salam alekoum
Greece - Yassou Spain - Hola ('oh-la')
Colombia - Hola ('oh-la') Indonesia - Salam, Appa kabar
Ecuador - Hola ('oh-la') Mexico - Hola ('oh-la')
France - Bonjour Morocco - Salam alekoum
Greece - Yassou Spain - Hola ('oh-la')
Shift Your Diet:
While no diets have been proven to alleviate the symptoms of Parkinson's disease (PD), there are also no special dietary restrictions. Remember to always check with your health care professional (HCP) before changing your diet.
A healthy diet is important
It's particularly important to stay active and energetic if you have PD. Eat a variety of foods from every major food group, including fruits and vegetables, grains, dairy products, meat, fish, poultry, and beans.
A balanced diet can keep you healthy and help manage digestion. This is important because PD can affect the muscles and nerves that control the digestive process. People with Parkinson's disease sometimes experience problems including constipation and gastroparesis (slowing of the muscles that help move food through the stomach and intestines).
Additionally, certain foods can slow digestion and delay or reduce the amount of levodopa that your body can use. This can cause your treatment to work less effectively.
Try these tips for eating a balanced diet, managing digestive problems, and maintaining an effective treatment plan:
Eat meals at the same time every day
Include high-fiber foods like whole-grain breads and cereals, fruits and vegetables, and beans
Drink plenty of fluids throughout the day
Avoid caffeine and alcohol; they act as diuretics and can aggravate constipation
Manage your protein intake. High-protein foods may lessen your body's ability to absorb levodopa
Avoid iron salts (usually found in multivitamin tablets), since they may reduce the amount of levodopa available in your body.
For more information where this exert was shared go to: http://www.stalevo.com/info/PDFacts/parkinsons-disease-diet.jsp?usertrack.filter_applied=true&NovaId=4029462041659299109
Welcome!
Welcome to my new friends in Columbia, Greece, India, Indonesia, Mexico, and Spain! Hope you continue to follow me on this journey! ~~Always A Diva
Wednesday, May 16, 2012
Welcome!
Welcome to my new friends in Australia & Morocco! Hope you will continue to follow me on this journey! ~Always A Diva
World Parkinson Congress - Click on link below:
October 1 - 4, 2013 Montreal, Canada
http://www.worldpdcongress.org/
http://www.worldpdcongress.org/
Benefits, Types & Examples of Exercise for PD:
Parkinson's disease is a degenerative muscle disorder that causes tremors, stiffness, trouble balancing and lack of mobility. The symptoms generally worsen over time, and there is no known cure. In addition to medication and close medical care, exercise is commonly recommended to improve functioning and quality of life in those with Parkinson's disease. Exercise classes that focus on stretching, such as yoga, tai chi and Pilates, may be especially beneficial.
BENEFITS: According to a Cornell study, patients who took part in gentle yoga classes for Parkinson's disease reported an overall improvement in their sense of well-being, including decreased stiffness and tension, and increased mobility and energy. Stretching exercises can also help counteract the postural changes caused by Parkinson's disease, including rounding forward of the shoulders and spine. In addition to physical benefits, group exercise classes may provide emotional support that can help people cope with Parkinson's disease. One cause of Parkinson's disease is an insufficient amount of dopamine in the brain; the cause of the decrease in dopamine is unknown and may be genetic. According to a 2002 study at the John F. Kennedy Institute, restorative or meditative yoga has been shown to increase dopamine levels, which may be one reason why Parkinson's disease patients report improvement after practicing yoga.
TYPES: If you have Parkinson's disease, take care when choosing an exercise program, and opt for a gentle and noncompetitive practice. Some hospitals or recovery centers have exercise classes for Parkinson's disease that focus specifically on stretching exercises as symptom management. Choose a yoga class for Parkinson's disease labeled as "gentle" or "restorative," and always talk to the instructor about your condition and particular concerns. Pilates is a system of exercise that focuses on small controlled movements and strengthening the core. Pilates classes for Parkinson's disease should be a gentler practice than those offered at many gyms and studios, but you can always ask the instructor for modifications. Tai chi and qigong classes also offer stretching exercises that are beneficial for those with Parkinson's disease.
EXAMPLES: The National Center on Physical Activity and Disability recommends gentle stretching exercises for Parkinson's that focus on the arms, legs and neck, as well as gentle twists, forward bends and side bends. Neck exercises include head tilts, chin tucks and head turns that decrease stiffness in the neck and shoulders. Yoga poses such Bound Angle Pose (baddha konasana), Head to Knee Pose (janu sirsasana), Standing Side Bend (Chandrasana), Wind Relieving Pose (pavanamuktasana) and Half Lord of the Fishes (ardha matsyendrasana) are beneficial stretching exercises for Parkinson's disease.
Read more: Stretching Exercises for Parkinson's Disease | eHow.com http://www.ehow.com/way_5394618_stretching-exercises-parkinsons-disease.html#ixzz1v2ZU2TrO
Maurice White of Earth, Wind & Fire living with PD:
Maurice White (born December 19, 1941) is an American singer, songwriter, musician, record producer, arranger and bandleader. He is the founder of the band Earth, Wind & Fire and the older brother of current and former Earth, Wind & Fire members Verdine White and Fred White respectively. Maurice served as the band's main songwriter and record producer, and he was co-lead singer (along with Phillip Bailey). White has won seven Grammys, and he has been Grammy nominated 21 times in total.
White was inducted into the Rock And Roll Hall Of Fame and the Vocal Group Hall of Fame as a member of Earth, Wind & Fire, and he was individually inducted in the Songwriters Hall of Fame. Also known by his nickname Reese, he has worked with several famous recording artists such as Deniece Williams, The Emotions, Barbra Streisand and Neil Diamond.
White was diagnosed with Parkinson's Disease in the late 1980s, which led him to stop touring with Earth, Wind & Fire in 1994. However, White retains executive control of the band, and he remains active in the music business.
~~For more information where this exert was taken visit: http://en.wikipedia.org/wiki/Maurice_White
Tuesday, May 15, 2012
Welcome!
Hello to my new viewers from Argentina and Poland! Continue to follow me on my journey!
~~Always A Diva
~~Always A Diva
Welcome New Friends!
Welcome to my new friends in Ecuador, France, United Kingdom and Venezuela! Continue to follow me on this journey! Always A Diva
Real Talk Tuesday~
Hello my friends!
When I started this blog, it was a way to share with friends and make new friends who are living with PD or have love ones and need encouragement or information about PD. It has helped me to face my fears and I'm glad I invited you to follow me on this journey!
With that out of the way, I wanted to share some real talk with you today. The reason I post Good Morning everyday because some days it's not a good morning for me. There are days when I don't want to get up. This might sound selfish but I'll explain why it's not. My body can barely move to get out of bed some days. Then when I do get it together, I don't look forward to taking seven or more medications that my body has to adjust to and for me on some days it can be an hour or more.
I also post encouraging phrases, pictures or quotes to not only encourage others but to encourage myself daily to DON'T GIVE UP!! I didn't imagine my latter years to have to depend on others to help me to do minimal tasks that I want to do myself. Now don't get me wrong, I'm not having a pity party we are just having some real talk today.
I am grateful and thankful that I serve a God that when I can't get through the days and nights, that he sends my guardian angels to give me that extra push. Sometimes He shows me through a passage from a book I'm reading or an article in a magazine. I might get a call from my Mom or a comment from a friend. Even a hello or have a blessed day from a stranger all to let me know that there is a purpose for everything that I am going thorough at this time in my life. I just have to relax, focus and learn from every pain and symptom that I go through what this lesson is and how do I apply it to my life!
~~Lovingly Always A Diva
When I started this blog, it was a way to share with friends and make new friends who are living with PD or have love ones and need encouragement or information about PD. It has helped me to face my fears and I'm glad I invited you to follow me on this journey!
With that out of the way, I wanted to share some real talk with you today. The reason I post Good Morning everyday because some days it's not a good morning for me. There are days when I don't want to get up. This might sound selfish but I'll explain why it's not. My body can barely move to get out of bed some days. Then when I do get it together, I don't look forward to taking seven or more medications that my body has to adjust to and for me on some days it can be an hour or more.
I also post encouraging phrases, pictures or quotes to not only encourage others but to encourage myself daily to DON'T GIVE UP!! I didn't imagine my latter years to have to depend on others to help me to do minimal tasks that I want to do myself. Now don't get me wrong, I'm not having a pity party we are just having some real talk today.
I am grateful and thankful that I serve a God that when I can't get through the days and nights, that he sends my guardian angels to give me that extra push. Sometimes He shows me through a passage from a book I'm reading or an article in a magazine. I might get a call from my Mom or a comment from a friend. Even a hello or have a blessed day from a stranger all to let me know that there is a purpose for everything that I am going thorough at this time in my life. I just have to relax, focus and learn from every pain and symptom that I go through what this lesson is and how do I apply it to my life!
~~Lovingly Always A Diva
Monday, May 14, 2012
Monday's Mediation~
Hey everyone,
Hope all is well for you this beautiful day! I'm late posting because I have been to the doctor's all day. Yeah "the doctor". For PD patients you will understand the quotes :). I'm doing good but I have this chronic pain in my back that limits me even more. Xray's were taking and I'll let you know later how everything works out.
Ironically, I wanted to talk about fitness and nutrition this week. Now I have not participated in fitness because the doctors can't get a handle on this back pain so it limits what I can do but before I had PD I lead a very active lifestyle by eating properly, going to the gym and walking regularly. I think back today when I was complaining about all the pain from working out, I would give anything to hit the gym now. I'm not saying PD patients can't exercise, I'm just not in the position for exercise at this time.
The eating part I could do better but meal plans can be challenging when family is the caregiver and younger children are a part of meals too. We have been working it out better because the younger children are in their teens now and they can cook for themselves.
Sometime I think the battle of wills come in when everyone holds their feelings inside about my condition instead of opening up and sharing how they feel. I am learning that despite the odds I'm facing, it's another day on my journey!
Lovingly, Always A Diva~~
Hope all is well for you this beautiful day! I'm late posting because I have been to the doctor's all day. Yeah "the doctor". For PD patients you will understand the quotes :). I'm doing good but I have this chronic pain in my back that limits me even more. Xray's were taking and I'll let you know later how everything works out.
Ironically, I wanted to talk about fitness and nutrition this week. Now I have not participated in fitness because the doctors can't get a handle on this back pain so it limits what I can do but before I had PD I lead a very active lifestyle by eating properly, going to the gym and walking regularly. I think back today when I was complaining about all the pain from working out, I would give anything to hit the gym now. I'm not saying PD patients can't exercise, I'm just not in the position for exercise at this time.
The eating part I could do better but meal plans can be challenging when family is the caregiver and younger children are a part of meals too. We have been working it out better because the younger children are in their teens now and they can cook for themselves.
Sometime I think the battle of wills come in when everyone holds their feelings inside about my condition instead of opening up and sharing how they feel. I am learning that despite the odds I'm facing, it's another day on my journey!
Lovingly, Always A Diva~~
Sunday, May 13, 2012
Saturday, May 12, 2012
A little light humor :)
Doctors claim to have found a cure for the common cold. They inject you with Parkinson's, then you should be able to shake it off in a week.
~~Sometimes we have to laugh or smile to keep from crying ~Always A Diva
~~Sometimes we have to laugh or smile to keep from crying ~Always A Diva
Friday, May 11, 2012
5 Tips On How To Cope With Your Loved Ones PD:
Hi Viewers,
This will end this weeks posts on how to cope and help you, a friend, or a loved with living with PD. These tips are very helpful!
In the early stages of Parkinson’s the symptoms and the effects of the disease probably won’t be so severe that they become difficult to deal with but as the disease progresses you will notice that your loved one has difficulty doing small tasks and might need help in order to do everyday things like preparing meals, walking, dressing, or getting around. It helps to find out all you can about the symptoms and effects of Parkinson’s so that when you’re loved one’s Parkinson’s starts to progress you are prepared for what might happen. Here are five tips from experienced caregivers about how to cope with your loved one’s Parkinson’s, especially when it progresses to the advanced stage.
1. Be observant – Your loved one might be embarrassed about his or her symptoms and might try to hide from that the disease is progressing. If you’re observant than you will notice when your loved one starts to do things differently than they used to, if he or she is having trouble doing everyday tasks, or if the symptoms seem to be getting worse. If you do notice any changes it’s important that you talk to your loved one’s caregiver or doctor about them.
2. Get support – Your loved one will need your support and love to deal with the effects of having Parkinson’s and you will need to be strong for him or her so it’s important that you get the support that you need to stay strong. If you really want to help your loved one it’s important that you find some support for yourself to help you renew your energy and strength so that you can continue to be supportive for your loved one. There are many online and local support groups that you can join to get the support that you need.
3. Take the time to grieve – It’s not easy to watch someone you love suffer, or to watch his or her physical condition deteriorate. You are entitled to take some time to grieve for the suffering of someone that you love and to deal with your emotions. It will make it easier for you to support your loved one if you take the time to acknowledge how Parkinson’s is affecting your life too. If your grief becomes overwhelming or if you start to get depressed you should see a professional counselor.
4. Follow your loved one’s lead – Sometimes a person with Parkinson’s might not want their diagnosis revealed to other friends and family or might not want anyone else to know. Even though it can be difficult to not share that information with others you should respect your loved one’s wishes when it comes to telling other people. Unless the health or safety of your loved one is compromised if your loved one doesn’t want anyone to know about their disease you should not tell anyone.
5. Take breaks – When you have a loved one that has Parkinson’s it’s easy for the disease to fill up your whole life. But in order to help your loved one and take care of yourself you need to still function in the outside world. Make sure that you make time to do things for yourself or with other friends like going to a movie, having lunch, getting your hair done, shopping and other activities that will get your mind off of Parkinson’s, at least for a little while.
This will end this weeks posts on how to cope and help you, a friend, or a loved with living with PD. These tips are very helpful!
In the early stages of Parkinson’s the symptoms and the effects of the disease probably won’t be so severe that they become difficult to deal with but as the disease progresses you will notice that your loved one has difficulty doing small tasks and might need help in order to do everyday things like preparing meals, walking, dressing, or getting around. It helps to find out all you can about the symptoms and effects of Parkinson’s so that when you’re loved one’s Parkinson’s starts to progress you are prepared for what might happen. Here are five tips from experienced caregivers about how to cope with your loved one’s Parkinson’s, especially when it progresses to the advanced stage.
1. Be observant – Your loved one might be embarrassed about his or her symptoms and might try to hide from that the disease is progressing. If you’re observant than you will notice when your loved one starts to do things differently than they used to, if he or she is having trouble doing everyday tasks, or if the symptoms seem to be getting worse. If you do notice any changes it’s important that you talk to your loved one’s caregiver or doctor about them.
2. Get support – Your loved one will need your support and love to deal with the effects of having Parkinson’s and you will need to be strong for him or her so it’s important that you get the support that you need to stay strong. If you really want to help your loved one it’s important that you find some support for yourself to help you renew your energy and strength so that you can continue to be supportive for your loved one. There are many online and local support groups that you can join to get the support that you need.
3. Take the time to grieve – It’s not easy to watch someone you love suffer, or to watch his or her physical condition deteriorate. You are entitled to take some time to grieve for the suffering of someone that you love and to deal with your emotions. It will make it easier for you to support your loved one if you take the time to acknowledge how Parkinson’s is affecting your life too. If your grief becomes overwhelming or if you start to get depressed you should see a professional counselor.
4. Follow your loved one’s lead – Sometimes a person with Parkinson’s might not want their diagnosis revealed to other friends and family or might not want anyone else to know. Even though it can be difficult to not share that information with others you should respect your loved one’s wishes when it comes to telling other people. Unless the health or safety of your loved one is compromised if your loved one doesn’t want anyone to know about their disease you should not tell anyone.
5. Take breaks – When you have a loved one that has Parkinson’s it’s easy for the disease to fill up your whole life. But in order to help your loved one and take care of yourself you need to still function in the outside world. Make sure that you make time to do things for yourself or with other friends like going to a movie, having lunch, getting your hair done, shopping and other activities that will get your mind off of Parkinson’s, at least for a little while.
~Lovingly Always A Diva
Exert taken from dated 2009 www.bodipedia.com/conditions-disease/parkinsons/how-to
Thursday, May 10, 2012
Side note:
Please feel free to click on the ads featured on the blog. They are links to more PD and other healthful information! Thanks :)
Access Patient Support Resources from Teva Neuroscience
Access Patient Support Resources from Teva Neuroscience: View resources developed by Teva Neuroscience to arm AZILECT (rasagiline tablets) patients with information, assistance and support.
Thankful Thursday~
Hi my viewers!
This week I have been sharing information on family support and when the time comes to get a professional caregiver. Through my research on finding the best information for myself, your loved ones, and others, I found a site with a source of information that you or a family member can download for free.
If your support comes from a caregiver, doctor, family, friends or a support group, help them to understand that somedays will be good and some not so good. Let them know you are doing your best to be as receptive to their help and that you want to get better so that you can lead a normal life to the best of your ability.
From me to you, what ever faith you believe in, I choose God, meditate and pray daily for good health, a long life and peace of mind!
~Lovingly, Always A Diva
This week I have been sharing information on family support and when the time comes to get a professional caregiver. Through my research on finding the best information for myself, your loved ones, and others, I found a site with a source of information that you or a family member can download for free.
If your support comes from a caregiver, doctor, family, friends or a support group, help them to understand that somedays will be good and some not so good. Let them know you are doing your best to be as receptive to their help and that you want to get better so that you can lead a normal life to the best of your ability.
From me to you, what ever faith you believe in, I choose God, meditate and pray daily for good health, a long life and peace of mind!
~Lovingly, Always A Diva
Wednesday, May 9, 2012
The journey to success for PD patients!
journey: passage or progress from one stage to another; support us!!
Guide for Caregivers: The Michael J. Fox Foundation~
Living with Parkinson's disease is challenging for caregivers as well as patients. ... Thecaregiver's role ... Parkinson's Disease Caregiver Information; Family Caregiver ...
www.michaeljfox.org/living_
Tuesday, May 8, 2012
Hello to my viewers following my journey outside of the US!
Bulgaria - Zdrave
German - Guten Tag
Malaysia - App macam
Russian - Zdravstvuj
South Africa - Sawubona
South Korea - Anyong haseyo
~Keep following and spread them word!!
German - Guten Tag
Malaysia - App macam
Russian - Zdravstvuj
South Africa - Sawubona
South Korea - Anyong haseyo
~Keep following and spread them word!!
Caregiving and Family Support - Parkinson's Disease Foundation (PDF)
A good site with an abundant of information-Click link below:
Caregiving
Caregiving
Poem - Motivating
~The Vow
No matter how deep the sadness or wide the pain,
I vow to live for a brighter day will come again.
No matter how many mistakes I’ve made in the past,
I vow to live and in the future avoid them, surefooted and fast.
No matter how many tragedies beyond my control take place,
I vow to live and stay my course within this race.
No matter how poor or rich I may ever be,
I vow to live and aspire to search for the dignity in simplicity.
No matter how much a lover may pierce the inner core of my heart,
I vow to live for like spring I’ll get a new start.
No matter how isolated and alone I may feel,
I vow to live and do something for someone else to heal.
No matter how hopeless my situation my appear,
I vow to live and reflect until my viewpoint is clear.
No matter what happens in this life – good or bad
I vow to live, do my best, and just for living – be glad.
~By Malcolm O. Varner
Monday, May 7, 2012
Monday's Meditation~
Hi my blog readers,
This week Monday's Meditation will be about should family or trained medical professionals be your caregiver. For me when I was first diagnosed, it wasn't a big deal for my family. The only times the tremors were noticed were when I was angry or stressed. I had did all types of research PD and was following the doctor's orders so that didn't occur often, in fact if you looked at me on the outside life looked pretty good.
My family didn't understand what PD was and how it comes in the different stages. I was blessed to stay in stage one for about four years. Around year five I started feeling more stiffness when I would wake and during the day. The tremors were occurring more often when I should have been in my down time (in between dosages). My family began to notice facial expressions and they noticed I was walking differently, signs that I had not really paid attention to. This is when they begin to ask me "what is wrong with you?" I told the doctor the new symptoms and they informed me that I was progressing to early stage two.
For me early stage two progressed very fast and this is when my family and I had decisions to make because I needed more help in day to day living. I have a wonderful mother who would move heaven and hell for her children. God bless her! But I would not burden her with trying to take care of me when my selfless sister was taking care of her.
God blessed me with four beautiful children; two are grown and two are in their teens. My eldest child, a daughter, took on the responsibility of being my caregiver. She has sacrificed a lot and put her life aside to take care of me. Believe me people it has not been an easy task for her! There have been times when I felt so bad that she was taking care of me when, in my mind, I felt I should be caring for myself. It was battle of the wills. :) My other children have now learned how to take care of me so she can have more time for herself and they are doing great. The funny thing is that I never wanted children but I thank God everyday that he blessed me with all four! By the way my daughter's name is Angel! Appropriate right. I think so.
If we had to do it all over again, we would go with a trained professional. They have no emotional ties and they don't care about your pity parties. It's their job and they get paid to handle patients, their emotions and problems professionally.
Lovingly Always A Diva
Sunday, May 6, 2012
Who would have thought :)
Porky Pig - Parkinson's Disease~
Porky Pig is a lovable hot tempered pig who first appeared as a minor character in a Warner Brothers cartoon. He has a trademark stutter that gets more pronounced as he gets agitated, which is guaranteed in any of his cartoon. Pending a medical examination, Porky would be a good candidate for a diagnosis of Parkinson’s disease. Those stricken with Parkinson’s tend to hold their stance as slightly bent at the knees and spine, with arms often akimbo. His rapid, barely intelligible speech and bent posture are known indicators of this disease.
Quote:
Courage doesn't always roar.
Sometimes courage is the quiet voice
at the end of the day saying,
"I will try again tomorrow."
- Mary Anne Radmacher
Sometimes courage is the quiet voice
at the end of the day saying,
"I will try again tomorrow."
- Mary Anne Radmacher
Saturday, May 5, 2012
Poem about living with PD:
BEING SICK OF PARKINSON'S
I got the disease when I was young
And I can't even express it on my tongue
But I have to live and a new life begins
Everyday is a struggle that I have to win
Parkinson's did not hampers my dreams
Until now I'm not standing and working
To support my kids for their future
And make our life secure
Positive attitude is all I have
And this give me courage to survive
~unknown
Quote: "To handle all the difficulties in life,
You must be brave and open-minded."
Friday, May 4, 2012
Quote:
“Nobody can go back and start a new beginning, but anyone can start today and make a new ending.” ~Maria Robinson
Just A Note!
Hi blog readers and viewers,
This week posts were about how PD medications can lead to symptoms of depression and sometime suicide. I know because I tried to commit suicide and I had to stay in a mental hospital. I thought to myself how selfish this decision was to end my life. I prayed and asked God to help me and show me the way back to reality. I started therapy and have been in therapy for two years and I must admit that I am coping and functioning much better. Sometime there are days where I feel overwhelmed but I think about the blessings in my life and I pray to God to keep my mind whole.
Next week I will be posting about family, choosing caregivers, and the roles they play in your life. Meet me here for Monday's Meditation. Stay blessed and safe.
Lovingly, Always A Diva
This week posts were about how PD medications can lead to symptoms of depression and sometime suicide. I know because I tried to commit suicide and I had to stay in a mental hospital. I thought to myself how selfish this decision was to end my life. I prayed and asked God to help me and show me the way back to reality. I started therapy and have been in therapy for two years and I must admit that I am coping and functioning much better. Sometime there are days where I feel overwhelmed but I think about the blessings in my life and I pray to God to keep my mind whole.
Next week I will be posting about family, choosing caregivers, and the roles they play in your life. Meet me here for Monday's Meditation. Stay blessed and safe.
Lovingly, Always A Diva
Thursday, May 3, 2012
Grateful~
Just a note of Thanks to my blog readers and viewers. I have viewers from not only the United States but Germany, Malaysia, Russia, South Korea and today a viewer from South Africa. I'm so grateful and happy because every link and story I post is something I have experienced or I am experiencing now. Please feel free to live comments or ask questions as you continue on this journey with me. Tell your family and friends or anyone you know struggling with PD to join my journey too.
Love to you all, Always A Diva
Depression and Suicide information:
Depression is a major risk factor for suicide. The deep despair and hopelessness that goes along with depression can make suicide feel like the only way to escape the pain. Thoughts of death or suicide are a serious symptom of depression, so take any suicidal talk or behavior seriously. It's not just a warning sign that the person is thinking about suicide: it's a cry for help.
Rates of depression in women are twice as high as they are in men. This is due in part to hormonal factors, particularly when it comes to premenstrual syndrome (PMS), premenstrual dysphoric disorder (PMDD), postpartum depression, and perimenopausal depression. As for signs and symptoms, women are more likely than men to experience pronounced feelings of guilt, sleep excessively, overeat, and gain weight. Women are also more likely to suffer from seasonal affective disorder.
If even the thought of tackling your depression seems overwhelming, don’t panic. Feeling helpless and hopeless is a symptom of depression—not the reality of your situation. It does not mean that you’re weak or you can’t change! The key to depression recovery is to start small and ask for help. Having a strong support system in place will speed your recovery. Isolation fuels depression, so reach out to others, even when you feel like being alone. Let your family and friends know what you’re going through and how they can support you.
Effective treatment for depression often includes some form of therapy. Therapy gives you tools to treat depression from a variety of angles. Also, what you learn in therapy gives you skills and insight to prevent depression from coming back.
Some types of therapy teach you practical techniques on how to reframe negative thinking and employ behavioral skills in combating depression. Therapy can also help you work through the root of your depression, helping you understand why you feel a certain way, what your triggers are for depression, and what you can do to stay healthy.
All exerts of this article can be found @http://www.helpguide.org/mental/depression_signs_types_diagnosis_treatment.htm
Wednesday, May 2, 2012
Newer Antidepressants May Be Safe for Parkinson's Patients~
Paxil, Effexor improved depression without worsening motor symptoms in small study.
Read article @
http://www.clinicalresearch.com/_layouts/cr/news/newsdetail.aspx?articleid=663682
Christian Views - Depression~
Christians do suffer with Depression~A Must Read:
Book: Depression - A Spiritual Guide
Written by : Archimandrite Spyridon Logothetis
Summary: A few words about depresion and how to fight it."God himself was the first to deal with this disease. God is mans first healer, who sought to free fim from depression."
http://www.religiousmall.com/rq-depression.html
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*ATTITUDE*
~We Are Not Disabled~
*Hope*
*African Proverb*
*Living with PD*
~Choices~
*Strength*
*Words*
*Faces of PD*
*Live, Love and Enjoy Life*
